Join us for an in-depth exploration of the evolving landscape of rare diseases in oncology, where leading experts will examine the unique challenges and emerging breakthroughs shaping care for patients with rare and complex malignancies. This dynamic program will highlight advances in molecular diagnostics, targeted therapies, and innovative treatment approaches that are redefining possibilities for patients whose conditions have historically lacked clear treatment pathways. Engage with thought leaders, collaborate with peers, and gain valuable insights into the clinical, scientific, and operational realities of rare disease management. Through expert discussion and practical perspectives, attendees will leave with a deeper understanding of how to recognize rare disease patterns, apply emerging evidence, and integrate new therapeutic strategies into clinical practice to improve patient outcomes.
Announcement
Hotel
Book Your Room
Renaissance Tampa International Plaza Hotel
4200 Jim Walter Blvd, Tampa, FL 33607
FLASCO has reserved a block of rooms for the discounted rate of $180 (plus applicable taxes and hotel fees) per night. Deadline to book July 31, 2026.
Call Hotel: 815-877-9200
PowerPoints
PowerPoint Decks
Systemic Mastocytosis: Recognizing and Managing a Rare Disease
Samuel B. Reynolds, MD
Moffitt Cancer Center
Complement-Mediated Disorders in Oncology: aHUS, TMA & PNH
Michael Jaglal, MD
Moffitt Cancer Center
Beyond B-Cell Thinking: Managing Peripheral & Cutaneous T-Cell Lymphomas
Jonathan Schatz, MD
UM Sylvester Comprehensive Cancer Center
GIST in the Real World: Sequencing Therapy Beyond First Line
Jonathan Trent, MD, PhD
UM Sylvester Comprehensive Cancer Center
Who Owns the Plan? Multidisciplinary Decisions in Rare CNS Tumors: Glioma & Ependymoma
Case 1: Glioblastoma
Case 2: Low Grade Glioma (IDH)
Case 3: Ependymoma (PFB)
Alex De Leo, MD
UF Health Cancer Institute
Matthew Koch, MD
Tara Massini, MD
Anthony Yachnis, MD
University of Florida
Desmoid Dilemmas: Observation, Progression, and When to Act
Joanne Lagmay, MD
UF Health Cancer Institute
Mesothelioma in Practice: Applying New Data to Real Patients
Erik Sylvin, MD
Holy Cross Health
Castleman Disease: Recognizing a Rare and Often Missed Diagnosis
Lubomir Sokol, MD
Moffitt Cancer Center
Rare Diagnoses Hidden in Plain Sight: Lysosomal Storage Diseases in Oncology
Coy Heldermon, MD, PhD
UF Health Cancer Institute
